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AUS sugery no day at the neach

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  • #1

    AUS sugery no day at the neach

    Has the AUS sugery Wednesday, was rather shocked with the pain associated with this surgery and the swelling of the scrotum.

    I was prescribed more and stronger narcotics than the single port prostatectomy.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.

    3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
    T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
    7 Nodes, SV, SM, PNI, and BNI were negative.
    LVI and Cribriform pattern present.
    Decipher .86 High Risk.

    Post Surgery PSA
    3/25/19 .03. (25 days)
    4/25/19. <.03. (2 months)
    5/25/19 <.02 (3 month)
    5/20/22. < .02 (39 months). T=37
    11/7/22. <.02 (45 months) T=54

    3 Part Modality Treatment Completed

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery his #41st in US.
    ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
    ADT - 5/19- 5/21 Eligard and Casodex.


    3 Part Modality Treatment Completed

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
    ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
    ADT - 5/19- 5/21 Eligard and Casodex.

    ​
    Tags: None
  • #2
    Welcome to the club Duck2 ... Yes, deep purple eggplant-like scrotum. Stitching all the way back to your a-hole. The first few weeks are a P-I-T-A.

    If you are on FB, I started a support group there... https://www.facebook.com/groups/ams800
    Late 2012: PSA 4, age 62 all DRE's 'normal'
    Early 2014: PSA 9.5, TRUS biopsy (false) negative
    2015: PSA's 12 & 20, lots of Cipro ... Mar '16: PSA 25, changed Urologist

    Jun'16: MRI fusion biopsy, rt base, 2ea 15-40-100% G8(4+4)
    Aug'16:DVRP, "broad cut" 11 LN-, neg margins, gland 53g, 25% involved
    multifocal EPE, PNI, BNI, bilateral SVI, pT3b N0    		 Dec 2016: Mrs: Dx stage 4 NHL/DLBCL, Primary Bone Lymphoma
    spinal RT boost+6X R-CHOP21+6X IT MTX via LP.
    Remission ended 2020, Follicular NHL. Currently active surveilance.

    Mar 2020: older adult son, T-cell acute lymphoblastic leukemia (TALL)
    Hyper-CVAD + pegaspargase, RBC transfusions in NYC amid COVID-19
    Bone marrow transplant Oct 2020, currently in Remission
    Jan'17: began Lupron ADT, uPSA's ~.03
    May'17: AMS800 implanted, revised 6/17
    Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
    Jan 2018-July 2022: PSA's <0.008, T ~ 50
    Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritis    		 June 2020: younger adult son, small bowel resection
    adenocarcinoma of lower ileum (SBA) w/+lymph node, stage T3a-N1
    Adjuvant chemo: 12x FOLFOX, currently in Remission

    "Everyone you meet is fighting a battle you cannot see"

    Comment

    • #3
      Hope your healing process is fast and complication free.

      Comment

      • #4
        Rob, I joined the FB group about 8 weeks ago. Egg plant sized scrotum, no purple and both incision down stairs is not big at all.
        Last edited by Duck2; 01-22-2023, 02:36 PM.
        YOB 1957

        DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &amp;lt;5%, Right side negative.

        3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
        T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
        7 Nodes, SV, SM, PNI, and BNI were negative.
        LVI and Cribriform pattern present.
        Decipher .86 High Risk.

        Post Surgery PSA
        3/25/19 .03. (25 days)
        4/25/19. <.03. (2 months)
        5/25/19 <.02 (3 month)
        5/20/22. < .02 (39 months). T=37
        11/7/22. <.02 (45 months) T=54

        3 Part Modality Treatment Completed

        2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery his #41st in US.
        ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
        ADT - 5/19- 5/21 Eligard and Casodex.


        3 Part Modality Treatment Completed

        2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
        ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
        ADT - 5/19- 5/21 Eligard and Casodex.

        ​
        • Likes 1

        Comment

        • Rob Lee
          #4.1
          Rob Lee commented
          01-26-2023, 10:44 AM
          Editing a comment
          Duck, I have admissions to that group set on auto pilot, so I don't actually see every new member join. Welcome to the group!
      • #5
        Still haven't determined the cause of the failure with my AUS. Doc wants to scope things out. Getting the appt is a bear apparently.

        On the implant, I ended up with two 1/2 cuts, no egg plant, no pain.
        Age Dx: 57
        PCa History: Father, Grandfathers, Uncles
        Oct16 Bx: Gleason 4+3 Grade Group 3 w/PNI, LB: 4+3 (60% pattern 4), RA: 3+3, RLM: 3+3, RLA: 3+3
        Jan17 RALP - Pathology = pT3a; Gleason 4+3; Weight: 42g - Dr. Grant Taylor
        Jun19 AMS800 installed, Jul19 activated - Dr. David Rapp
        Sep22 AMS800 failed. Scheduling a replacement if possible.
        PSA_TESTS: Apr16-5.10, Jul16-4.70, Aug16-5.13, Mar17<0.01, Jul17<0.01, Oct17<0.01, Jan18<0.01, May18<0.01, Nov18<0.01, Jan19<0.01, Jun19<0.02, Nov20<0.10, May21<0.10, Apr22<0.10, Sep22<0.10​

        Comment

        • #6
          Hope recovery is going well.
          born 1958
          PSA History:
          1/22/10 -7/16/21 1.7-2.3
          01/10/2022 2.2
          07/08/2022 1.7

          Biopsy 9/2021 slides read by local urology group
          unfelt small leasion found in 3 sectors
          I. Gle 3+3 (SUP Grp 1) .5mm involving(1% & PIN)
          K. a Gle 3+4 (SUP Grp 2)2 mm involving(10%)
          L. Gle 3+4 (SUP Grp 2)1.5 mm involving(5% patchy)
          Gle 3+4

          Decipher score .26 Low Risk

          Johns Hopkins, Dr. Epstein read of slides 10/14/2021
          I. Small focus of prostatic adenocarcinoma, Gleason Score 3+3 (group 1), involving less than 5% of one (1) core
          K. Gle 3+3 (group 1), involving 10% of one (1) core
          L. , Gle 3+3 (group 1), discont. involving 20% of one (1) core



          MP MRI 12/10/2021 results:
          1. No index lesion identified. MRI findings
          PI RADS 2 abnormality (low likelihood of clinically
          significant prostate cancer).

          October 2022:
          biopsy 16 cores. 2 G3+4 one G3+3
          MRI: pirads 4 now
          Decipher .46 Intermediate risk

          RALP 12-14-22
          pT2 pNX, adenocarcinoma, G7 (3+4), 6-10% Pattern 4
          EPE SM SVI LVI BNI all neg., no IDC or cribriform glands
          5.2 x 5.1 x 3.7 cm, 45 g, tumor involvement: 6-10%
          Largest of 3 nodules 2.3 x 1.4 x 1.0 cm, nodule with most Pattern 4: 30%​

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