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A little taste of T

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  • #1

    A little taste of T

    I started adjuvant ADT in May of 2019 and shortly after the estrogen patches to treat hot flashes. My T was testing <3 and when I was working out I would carry a towel in a container of ice water to use because the hot flashes and massive flood of perspiration on my face during exertion. About a month ago, that changed like over a week and my energy levels soared with my sleep decreasing about 14 hours a week.

    I had my 6 month followup and blood draw yesterday. Told my oncologist I thought my T was recovering and guessed it was 50. The test results today were 37 and not a bad guess on my part. Even at that low value I feel great or feel great compared to what was the old norm. The PSA still hanging in <0.02. Life is a whole lot better. πŸ˜€
    Last edited by Duck2; 06-15-2022, 07:57 AM.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &amp;lt;5%, Right side negative.

    3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
    T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
    7 Nodes, SV, SM, PNI, and BNI were negative.
    LVI and Cribriform pattern present.
    Decipher .86 High Risk.

    Post Surgery PSA
    3/25/19 .03. (25 days)
    4/25/19. <.03. (2 months)
    5/25/19 <.02 (3 month)
    5/20/22. < .02 (39 months). T=37
    11/7/22. <.02 (45 months) T=54
    5/8/2023 <02​ (51 months)

    3 Part Modality Treatment Completed

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery his #41st in US.
    ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
    ADT - 5/19- 5/21 Eligard and Casodex.


    3 Part Modality Treatment Completed

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
    ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
    ADT - 5/19- 5/21 Eligard and Casodex.

    ​
    Tags: None
  • #2
    Are you measuring your T in the morning? It decreases during the day.
    69 yr at diagnosis, BPH x 20 yr, 9 (!) neg. biopsies, PCA3-
    7-05-13 TURP for BPH (90β†’30 g) path neg. for PCa, then 6-mo. checks
    6-06-17 Nodule on right + PSA rise on finasteride: 3.6β†’4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Nodule neg. for PCa
    Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, neg. frozen sections, Duke Regional Hosp.
    SM EPE BNI LVI SVI LNI(5L, 11R): negative, PNI+, nerves spared
    pT2c pN0 pMX, G9 (4+5) acinar adenocarcinoma
    5% of prostate (4.5 x 5 x 4 cm, 64 g) involved
    Dry; ED OK with sildenafil
    11-10-17 Decipher score: 0.37, Low Risk:
    5-yr met risk: 2.4%, 10-yr PCa-specific mortality: 3.3%    		 9-16-17 (5 wk) PSA <0.1
    (3 m ) 0.010
    (6 m ) 0.009
    (9 m ) 0.007 (nadir)
    (1 yr.) 0.018 (?)
    (13 m) 0.013 (retest)
    (15 m) 0.012
    (18 m) 0.015
    (21 m) 0.015
    (2 yr. ) 0.016
    (28 m) 0.015
    (34 m) <0.014
    (40 m) 0.037 (?)
    (43 m) 0.020
    (46 m) 0.018
    (52 m) 0.023
    (5 yr) 0.038
    (63 m) 0.036
    (66 m) 0.049
    (69 m) 0.054

    Comment

    • #3
      Originally posted by Duck2 View Post
      ... I feel great compared to what was the old norm. The PSA still hanging in <0.02. Life is a whole lot better. πŸ˜€
      Great news Duck! I hope your T continues to improve and may your PSA remain forever low.

      Late 2012: PSA 4, age 62 all DRE's 'normal'
      Early 2014: PSA 9.5, TRUS biopsy (false) negative
      2015: PSA's 12 & 20, lots of Cipro ... Mar '16: PSA 25, changed Urologist

      Jun'16: MRI fusion biopsy, rt base, 2ea 15-40-100% G8(4+4)
      Aug'16:DVRP, "broad cut" 11 LN-, neg margins, gland 53g, 25% involved
      multifocal EPE, PNI, BNI, bilateral SVI, pT3b N0      		 Dec 2016: Mrs: Dx stage 4 NHL/DLBCL, Primary Bone Lymphoma
      spinal RT boost+6X R-CHOP21+6X IT MTX via LP.
      Remission ended 2020, Follicular NHL. Currently active surveilance.

      Mar 2020: older adult son, T-cell acute lymphoblastic leukemia (TALL)
      Hyper-CVAD + pegaspargase, RBC transfusions in NYC amid COVID-19
      Bone marrow transplant Oct 2020, currently in Remission
      Jan'17: began Lupron ADT, uPSA's ~.03
      May'17: AMS800 implanted, revised 6/17
      Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
      Jan 2018-July 2022: PSA's <0.008, T ~ 50
      Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritis      		 June 2020: younger adult son, small bowel resection
      adenocarcinoma of lower ileum (SBA) w/+lymph node, stage T3a-N1
      Adjuvant chemo: 12x FOLFOX, currently in Remission

      "Everyone you meet is fighting a battle you cannot see"

      Comment

      • #4
        Originally posted by DjinTonic View Post
        Are you measuring your T in the morning? It decreases during the day.
        No, just showing up at what ever time they schedule me, but even if it were 3x higher at 6am it’s still low.

        YOB 1957

        DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &amp;lt;5%, Right side negative.

        3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
        T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
        7 Nodes, SV, SM, PNI, and BNI were negative.
        LVI and Cribriform pattern present.
        Decipher .86 High Risk.

        Post Surgery PSA
        3/25/19 .03. (25 days)
        4/25/19. <.03. (2 months)
        5/25/19 <.02 (3 month)
        5/20/22. < .02 (39 months). T=37
        11/7/22. <.02 (45 months) T=54
        5/8/2023 <02​ (51 months)

        3 Part Modality Treatment Completed

        2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery his #41st in US.
        ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
        ADT - 5/19- 5/21 Eligard and Casodex.


        3 Part Modality Treatment Completed

        2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
        ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
        ADT - 5/19- 5/21 Eligard and Casodex.

        ​

        Comment

        • #5
          Another odd event. When on ADT with no T my tinnitus disappeared. It is now back.
          YOB 1957

          DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &amp;lt;5%, Right side negative.

          3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
          T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
          7 Nodes, SV, SM, PNI, and BNI were negative.
          LVI and Cribriform pattern present.
          Decipher .86 High Risk.

          Post Surgery PSA
          3/25/19 .03. (25 days)
          4/25/19. <.03. (2 months)
          5/25/19 <.02 (3 month)
          5/20/22. < .02 (39 months). T=37
          11/7/22. <.02 (45 months) T=54
          5/8/2023 <02​ (51 months)

          3 Part Modality Treatment Completed

          2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery his #41st in US.
          ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
          ADT - 5/19- 5/21 Eligard and Casodex.


          3 Part Modality Treatment Completed

          2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
          ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
          ADT - 5/19- 5/21 Eligard and Casodex.

          ​

          Comment

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