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    A little embarrassed but appt with URO not until next week.. But my husband has noticed that when he does number one and pass gas, he wipes himself and there is Forum on the tissue like he did number two but he hadnt. Not alot but some is there. He said after surgery this was happening but it went away. Now it's back and seems more frequent. Any ideas. 45 yr black male..
    Wife posting - DOB 5/76- Black Male

    PSA Hist:
    1/2018 2.66
    1/2019 3.39
    Retest 2/019 3.04

    MRI 3/2019: 3 Lesions identified (1) Pirads 4 & (2)Pirads3
    MRI Guided Biopsy 4/11/2019: G6(3+3)

    RMB: 10% of 1 core
    RMM: 10% of the tissue (fragmented specimen).
    RMA: High-grade prostatic intraepithelial neoplasia.
    RLB: 25% of 1 core.
    RLM: 70% of tissue
    RLA: 50% of 1 core.
    LMB: 80% of 1 core.
    Lesion #2, in 3 of 3 cores, 80% of total tissue

    RALP 6/5/19 USMD Arlington Dr. R. Parham
    Cath 6 days, bladder spasms, cath back in for 5 days
    No incontinence/Minimum ED (using Sildenafil as needed)

    Final Path 6/11/19: G6(3+3)
    SV, BNI, Adipose Tissue, ECE, Margins, PNI, LVI, LNI(0of8) All Negative

    PT2N0 ~10% involved by tumor

    Quest Diagnostics uPSA:
    9/7/19 (3mths) <0.02
    1/4/20 (7mths) <0.1 & <0.02
    1/20/20 Annual physical <0.02
    6/6/20 (1yr) <0.02
    12/5/20(18mths) <0.02
    6/5/21(2Yr) <0.1
    1/17/22(31mths) 0.009-Clinical Path Lab ultrasensitive
    6/9/22(3 years)??

    ​​​​
    ​​​​

  • #2
    Honeybun,

    I'm not sure what "Forum" is but assuming fecal matter, just in case "Forum" is blood though make an appt ASAP.

    If fecal matter, has his diet changed where it might be a cause? Or, is your hubby straining to urinate and somehow forcing his bowels?
    Age Dx'd 57
    PCa History: Father, Uncles, Grandfathers
    Oct16 Bx: Gleason 4+3 Grade Group 3 w/PNI
    LB: 4+3 (60% pattern 4) CI 30%
    RA: 3+3 CI 60%
    RLM: 3+3 CI 10%
    RLA: 3+3 CI 10%

    Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3; Weight: 42g

    Jun 2019 AMS800 installed, Jul 2019 activated - Dr. David Rapp
    ED: Moderate
    (Note: All PSA tests prior to Jun19 were done by LabCore)
    PSA_TESTS
    Apr16-5.10
    Jul16-4.70
    Aug16-5.13

    ----Surgery----
    Mar17<0.01
    Jul17<0.01
    Oct17<0.01
    Jan18<0.01
    May18<0.01
    Nov18<0.01
    Jan19<0.01
    Jun19<0.02
    Nov20<0.10
    May21<0.10
    Apr22<0.10

    Comment


    • #3
      No blood, just fecal. Damn spell check changed it to forum. Google review and appears fecal incontinence but I'll call the Dr. Gonna have him start his kegals again. He had stopped after getting full continence back. He said it only happens when he passes gas when he pee.
      Wife posting - DOB 5/76- Black Male

      PSA Hist:
      1/2018 2.66
      1/2019 3.39
      Retest 2/019 3.04

      MRI 3/2019: 3 Lesions identified (1) Pirads 4 & (2)Pirads3
      MRI Guided Biopsy 4/11/2019: G6(3+3)

      RMB: 10% of 1 core
      RMM: 10% of the tissue (fragmented specimen).
      RMA: High-grade prostatic intraepithelial neoplasia.
      RLB: 25% of 1 core.
      RLM: 70% of tissue
      RLA: 50% of 1 core.
      LMB: 80% of 1 core.
      Lesion #2, in 3 of 3 cores, 80% of total tissue

      RALP 6/5/19 USMD Arlington Dr. R. Parham
      Cath 6 days, bladder spasms, cath back in for 5 days
      No incontinence/Minimum ED (using Sildenafil as needed)

      Final Path 6/11/19: G6(3+3)
      SV, BNI, Adipose Tissue, ECE, Margins, PNI, LVI, LNI(0of8) All Negative

      PT2N0 ~10% involved by tumor

      Quest Diagnostics uPSA:
      9/7/19 (3mths) <0.02
      1/4/20 (7mths) <0.1 & <0.02
      1/20/20 Annual physical <0.02
      6/6/20 (1yr) <0.02
      12/5/20(18mths) <0.02
      6/5/21(2Yr) <0.1
      1/17/22(31mths) 0.009-Clinical Path Lab ultrasensitive
      6/9/22(3 years)??

      ​​​​
      ​​​​

      Comment


      • #4
        Originally posted by MRJ View Post
        Honeybun,

        I'm not sure what "Forum" is but assuming fecal matter, just in case "Forum" is blood though make an appt ASAP.

        If fecal matter, has his diet changed where it might be a cause? Or, is your hubby straining to urinate and somehow forcing his bowels?
        See above.. Speel check changed fecal to forum. No blood, no straining. Life has been stressful. Death of an Aunt.. Father in law was ill. So diet has been pretty bad.. Gonna work on diet and kegals again. Hopefully that'll help.
        Wife posting - DOB 5/76- Black Male

        PSA Hist:
        1/2018 2.66
        1/2019 3.39
        Retest 2/019 3.04

        MRI 3/2019: 3 Lesions identified (1) Pirads 4 & (2)Pirads3
        MRI Guided Biopsy 4/11/2019: G6(3+3)

        RMB: 10% of 1 core
        RMM: 10% of the tissue (fragmented specimen).
        RMA: High-grade prostatic intraepithelial neoplasia.
        RLB: 25% of 1 core.
        RLM: 70% of tissue
        RLA: 50% of 1 core.
        LMB: 80% of 1 core.
        Lesion #2, in 3 of 3 cores, 80% of total tissue

        RALP 6/5/19 USMD Arlington Dr. R. Parham
        Cath 6 days, bladder spasms, cath back in for 5 days
        No incontinence/Minimum ED (using Sildenafil as needed)

        Final Path 6/11/19: G6(3+3)
        SV, BNI, Adipose Tissue, ECE, Margins, PNI, LVI, LNI(0of8) All Negative

        PT2N0 ~10% involved by tumor

        Quest Diagnostics uPSA:
        9/7/19 (3mths) <0.02
        1/4/20 (7mths) <0.1 & <0.02
        1/20/20 Annual physical <0.02
        6/6/20 (1yr) <0.02
        12/5/20(18mths) <0.02
        6/5/21(2Yr) <0.1
        1/17/22(31mths) 0.009-Clinical Path Lab ultrasensitive
        6/9/22(3 years)??

        ​​​​
        ​​​​

        Comment


        • #5
          Part of the surgery is changing the plumbing a lot to accommodate the the space that was created by removing the prostate. I experienced some strange things, At year 3 it appears to have cured itself, but I also had radiation and there’s that.
          YOB 1957

          DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &lt;5%, Right side negative.

          3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
          T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
          7 Nodes, SV, SM, PNI, and BNI were negative.
          LVI and Cribriform pattern present.
          Decipher .86 High Risk.

          Post Surgery PSA
          3/25/19 .03. (25 days)
          4/25/19 <.03. (2 months)
          5/25/19 <.02 (3 months)
          9/10/2019. <.02 (7 months)
          11/27/2019. <.02. T < 3 (9 months)
          5/19/2020. <.02 (15 months)
          11/2/2020. <.02 (21 months)
          5/11/2021. <.02 T <3 (27 months)
          8/25/2021. <.02 T <3 (30 months)
          12/6/2021. <.02 T <3 (33 months)


          3 Part Modality Treatment Completed

          2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
          ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
          ADT - 5/19- 5/21 Eligard and Casodex.

          Comment


          • #6
            Originally posted by Duck2 View Post
            Part of the surgery is changing the plumbing a lot to accommodate the the space that was created by removing the prostate. I experienced some strange things, At year 3 it appears to have cured itself, but I also had radiation and there’s that.
            That's what's weird, it happened at fiest but went away and now he said it's happening a couple times a week and started about two weeks ago. I'm wondering if diet.. We have eaten horrible past few weeks with all our family issues.
            Wife posting - DOB 5/76- Black Male

            PSA Hist:
            1/2018 2.66
            1/2019 3.39
            Retest 2/019 3.04

            MRI 3/2019: 3 Lesions identified (1) Pirads 4 & (2)Pirads3
            MRI Guided Biopsy 4/11/2019: G6(3+3)

            RMB: 10% of 1 core
            RMM: 10% of the tissue (fragmented specimen).
            RMA: High-grade prostatic intraepithelial neoplasia.
            RLB: 25% of 1 core.
            RLM: 70% of tissue
            RLA: 50% of 1 core.
            LMB: 80% of 1 core.
            Lesion #2, in 3 of 3 cores, 80% of total tissue

            RALP 6/5/19 USMD Arlington Dr. R. Parham
            Cath 6 days, bladder spasms, cath back in for 5 days
            No incontinence/Minimum ED (using Sildenafil as needed)

            Final Path 6/11/19: G6(3+3)
            SV, BNI, Adipose Tissue, ECE, Margins, PNI, LVI, LNI(0of8) All Negative

            PT2N0 ~10% involved by tumor

            Quest Diagnostics uPSA:
            9/7/19 (3mths) <0.02
            1/4/20 (7mths) <0.1 & <0.02
            1/20/20 Annual physical <0.02
            6/6/20 (1yr) <0.02
            12/5/20(18mths) <0.02
            6/5/21(2Yr) <0.1
            1/17/22(31mths) 0.009-Clinical Path Lab ultrasensitive
            6/9/22(3 years)??

            ​​​​
            ​​​​

            Comment


            • #7
              I have experienced changes, but attributing what was going on to the surgery, meds, or RT are a bit difficult. In general, I never experienced constipation pre surgery and do today.
              YOB 1957

              DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM &lt;5%, Right side negative.

              3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
              T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
              7 Nodes, SV, SM, PNI, and BNI were negative.
              LVI and Cribriform pattern present.
              Decipher .86 High Risk.

              Post Surgery PSA
              3/25/19 .03. (25 days)
              4/25/19 <.03. (2 months)
              5/25/19 <.02 (3 months)
              9/10/2019. <.02 (7 months)
              11/27/2019. <.02. T < 3 (9 months)
              5/19/2020. <.02 (15 months)
              11/2/2020. <.02 (21 months)
              5/11/2021. <.02 T <3 (27 months)
              8/25/2021. <.02 T <3 (30 months)
              12/6/2021. <.02 T <3 (33 months)


              3 Part Modality Treatment Completed

              2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
              ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
              ADT - 5/19- 5/21 Eligard and Casodex.

              Comment


              • #8
                Obviously discuss this with his uro, but I think this is just a question of a change in diet/eating habits, altered intestinal flora, stress... Are his bowel habits regular or have they changed too? If so, perhaps starting off with a small amount of a metamucil/a fiber supplement. Perhaps some simethicone/gas tablets if he thinks he's been having more gas than is usual. If it continues, then a visit to his primary care doc would be in order. The uro will probably give you advice, too.

                Djin
                Last edited by DjinTonic; 05-14-2022, 08:56 PM.
                69 yr at diagnosis, BPH x 20 yr, 9 (!) negative biopsies, PCA3-
                7-05-13 TURP for BPH (90→30 g) path negative for PCa, then 6-mo. checks
                6-06-17 Nodule on right + PSA rise on finasteride: 3.6→4.3
                6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
                Nodule was negative for PCa
                Bone scan, CTs, X-rays: neg.
                8-7-17 Open RP, negative frozen sections, Duke Regional Hosp.
                SM EPE BNI LVI SVI LNI(5L, 11R): negative, PNI+, nerves spared
                pT2c pN0 pMX, G9 (4+5) acinar adenocarcinoma
                5% of prostate (4.5 x 5 x 4 cm, 64 g) involved
                Dry; ED OK with sildenafil
                11-10-17 Decipher score: 0.37, Low Risk:
                5-yr met risk: 2.4%, 10-yr PCa-specific mortality: 3.3%
                9-16-17 (5 wk) PSA <0.1
                LabCorp uPSA:
                11-28-17 (3 m ) 0.010
                02-26-18 (6 m ) 0.009
                05-30-18 (9 m ) 0.007 (nadir)
                08-27-18 (1 yr.) 0.018 (huh?)
                09-26-18 (13 m) 0.013 (retest)
                11-26-18 (15 m) 0.012
                02-25-19 (18 m) 0.015
                05-22-19 (21 m) 0.015
                08-28-19 (2 yr. ) 0.016
                12-18-19 (28 m) 0.015
                06-30-20 (34 m) <0.014
                12-30-20 (40 m) 0.037 (?)
                03-31-21 (43 m) 0.020
                07-13-21(46 m) 0.018
                01-25-22(52 m) 0.023

                Comment


                • #9
                  Originally posted by DjinTonic View Post
                  Obviously discuss this with his uro, but I think this is just a question of a change in diet/eating habits, altered intestinal flora, stress... Are his bowel habits regular or have they changed too? If so, perhaps starting off with a small amount of a metamucil/a fiber supplement. Perhaps some simethicone/gas tablets if he thinks he's been having more gas than is usual. If it continues, then a visit to his primary care doc would be in order. The uro will probably give you advice, too.

                  Djin
                  Thanks Djin. Yea, I'm going to let URO and PD know as well. He said doesn't happened often and only been last two weeks which have been so much going on. We haven't eaten so bad these past few weeks. I'm going to try Metamucil. We have really had too much fried food and not enough vegetables.
                  Wife posting - DOB 5/76- Black Male

                  PSA Hist:
                  1/2018 2.66
                  1/2019 3.39
                  Retest 2/019 3.04

                  MRI 3/2019: 3 Lesions identified (1) Pirads 4 & (2)Pirads3
                  MRI Guided Biopsy 4/11/2019: G6(3+3)

                  RMB: 10% of 1 core
                  RMM: 10% of the tissue (fragmented specimen).
                  RMA: High-grade prostatic intraepithelial neoplasia.
                  RLB: 25% of 1 core.
                  RLM: 70% of tissue
                  RLA: 50% of 1 core.
                  LMB: 80% of 1 core.
                  Lesion #2, in 3 of 3 cores, 80% of total tissue

                  RALP 6/5/19 USMD Arlington Dr. R. Parham
                  Cath 6 days, bladder spasms, cath back in for 5 days
                  No incontinence/Minimum ED (using Sildenafil as needed)

                  Final Path 6/11/19: G6(3+3)
                  SV, BNI, Adipose Tissue, ECE, Margins, PNI, LVI, LNI(0of8) All Negative

                  PT2N0 ~10% involved by tumor

                  Quest Diagnostics uPSA:
                  9/7/19 (3mths) <0.02
                  1/4/20 (7mths) <0.1 & <0.02
                  1/20/20 Annual physical <0.02
                  6/6/20 (1yr) <0.02
                  12/5/20(18mths) <0.02
                  6/5/21(2Yr) <0.1
                  1/17/22(31mths) 0.009-Clinical Path Lab ultrasensitive
                  6/9/22(3 years)??

                  ​​​​
                  ​​​​

                  Comment

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