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I'm posting this for a friend of mine. For those of you who had a catheter after surgery, how did you keep the urine bag clean when switching between the small leg bag and the large "carry around" bag? I personally never changed bags. I always left the large bag on and never once disconnected it. That doesn't help my friend any! The info he has found on youtube and online shows cleaning the bags with hot soapy water and a syringe and other tubing that he does not have. He can't reach the nurse's desk to get any info. Just trying to help him out and see if anybody here knows.
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2018-10 PSA 11.84
2019-01 Da Vinci Prostatectomy
2019-03 PSA 0.133
2019-05 PSA 0.143
2019-07 PSA 0.183
2019-08 PSA 0.197
2019-08 Start ADT
2019-09 Start SRT
2019-12 End ADT and SRT
2020-01 PSA <0.006
2020-04 PSA 0.040
2020-07 PSA 0.096
2020-08 PSA 0.104
2020-09 PSA 0.113
2020-10 PSA 0.122
2020-10 Started bicalutamide 50mg daily
2021-01 PSA <0.014
2021-04 PSA <0.014
2021-11 PSA 0.018
2022-02 PSA 0.018 -
Never mind, nurses station called back and got him the required "tools" to properly clean the bags. It's a little odd they didn't get it right the first time around but they are busy.2018-10 PSA 11.84
2019-01 Da Vinci Prostatectomy
2019-03 PSA 0.133
2019-05 PSA 0.143
2019-07 PSA 0.183
2019-08 PSA 0.197
2019-08 Start ADT
2019-09 Start SRT
2019-12 End ADT and SRT
2020-01 PSA <0.006
2020-04 PSA 0.040
2020-07 PSA 0.096
2020-08 PSA 0.104
2020-09 PSA 0.113
2020-10 PSA 0.122
2020-10 Started bicalutamide 50mg daily
2021-01 PSA <0.014
2021-04 PSA <0.014
2021-11 PSA 0.018
2022-02 PSA 0.018 -
I never used the leg bag, but when I changed bags I did it in the shower and washed the old bag out with Dawn detergent.YOB 1957
DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.
3/6/19. Post surgery Pathology Report - Grade Group 4 Intraductal Carcinoma
T3aNO, <1 mm non focal EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.
7 Nodes, SV, SM, PNI, and BNI were negative.
LVI and Cribriform pattern present.
Decipher .86 High Risk.
Post Surgery PSA
3/25/19 .03. (25 days)
4/25/19 <.03. (2 months)
5/25/19 <.02 (3 months)
9/10/2019. <.02 (7 months)
11/27/2019. <.02. T < 3 (9 months)
5/19/2020. <.02 (15 months)
11/2/2020. <.02 (21 months)
5/11/2021. <.02 T <3 (27 months)
8/25/2021. <.02 T <3 (30 months)
12/6/2021. <.02 T <3 (33 months)
3 Part Modality Treatment Completed
2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic, Dr. Kaouk, surgery #41 in US.
ART - 7/25/-9/25 2019 (78 Gy, yes, I glow in the dark).
ADT - 5/19- 5/21 Eligard and Casodex.
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After surgery I used only the big overnight "carry around" bag all week and switched to the leg bag just before heading out to the uro's office to have the Foley removed. I guess it's moot now, but I used a leg bag for nearly a year after the initial Foley was removed. I would rinse them with cold, then warm, then hot water, and pour in a bit of rubbing alcohol. Swish back and forth, then rinse again. They would get funky after about a week and I would swap out to a new one. As I recall the 1L bags were around $4 in bulk.Late 2012: PSA 4, age 62 all DRE's 'normal'
Early 2014: PSA 9.5, TRUS biopsy (false) negative
2015: PSA's 12 & 20, lots of Cipro ... Mar '16: PSA 25, changed Urologist
Jun'16: MRI fusion biopsy, RT base, 2ea 15-40-100% G8(4+4)
Aug'16:DVRP, "broad cut" 11 LN-, neg margins, gland 53g, 25% involved
multifocal EPE, PNI, BNI, bilateral SVI, pT3b N0Dec 2016: Mrs: Dx stage 4 NHL/DLBCL, Primary Bone Lymphoma
spinal RT boost+6X R-CHOP21+6X IT MTX via LP.
Remission ended 2020, Follicular NHL. Currently active surveilance.
Mar 2020: older adult son, T-cell acute lymphoblastic leukemia (TALL)
Hyper-CVAD + pegaspargase, RBC transfusions in NYC amid COVID-19
Bone marrow transplant Oct 2020, currently in RemissionJan'17: began Lupron ADT, uPSA's ~.03
May'17: AMS800 implanted, revised 6/17
Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
Jan 2018-Jan 2022: PSA's <0.008, T=50
Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritisJune 2020: younger adult son, small bowel resection
adenocarcinoma of lower ileum (SBA) w/+lymph node, stage T3a-N1
Adjuvant chemo: 12x FOLFOX, currently in Remission
"Everyone you meet is fighting a battle you cannot see"Comment
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Wait a minute...
When I asked, my nurse told me to grind down 1/8th of a bar of LifeBoy soap and add it to my food daily.
She said it would help keep the catheter bag and tubing clean and also help with bowel movements.
Now, here you guys are talking like there were other methods.
//Joking//Last edited by MRJ; 04-28-2022, 09:49 AM.Age Dx'd 57
PCa History: Father, Uncles, Grandfathers
Oct16 Bx: Gleason 4+3 Grade Group 3 w/PNI
LB: 4+3 (60% pattern 4) CI 30%
RA: 3+3 CI 60%
RLM: 3+3 CI 10%
RLA: 3+3 CI 10%
Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3; Weight: 42g
Jun 2019 AMS800 installed, Jul 2019 activated - Dr. David Rapp
ED: Moderate
(Note: All PSA tests prior to Jun19 were done by LabCore)PSA_TESTS
Apr16-5.10
Jul16-4.70
Aug16-5.13
----Surgery----
Mar17<0.01
Jul17<0.01
Oct17<0.01
Jan18<0.01
May18<0.01
Nov18<0.01
Jan19<0.01
Jun19<0.02
Nov20<0.10
May21<0.10
Apr22<0.10Comment
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Casualty of 2012 USPSTF recommendationsComment
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Yep. Joking. I thought the LifeBoy soap reference might be enough.Age Dx'd 57
PCa History: Father, Uncles, Grandfathers
Oct16 Bx: Gleason 4+3 Grade Group 3 w/PNI
LB: 4+3 (60% pattern 4) CI 30%
RA: 3+3 CI 60%
RLM: 3+3 CI 10%
RLA: 3+3 CI 10%
Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3; Weight: 42g
Jun 2019 AMS800 installed, Jul 2019 activated - Dr. David Rapp
ED: Moderate
(Note: All PSA tests prior to Jun19 were done by LabCore)PSA_TESTS
Apr16-5.10
Jul16-4.70
Aug16-5.13
----Surgery----
Mar17<0.01
Jul17<0.01
Oct17<0.01
Jan18<0.01
May18<0.01
Nov18<0.01
Jan19<0.01
Jun19<0.02
Nov20<0.10
May21<0.10
Apr22<0.10Comment
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