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  • issues when signing up....just a heads up

    Hello all, finally made it. FWIW, many of the EM ended up in my spam folder and then became difficult to get to the activation process. Finally, all has worked out. Glad to be here and see all the folks from the previous site...Thanks to all who have made this possible. still learning and figuring things out....
    DOB-2/16/58
    psa-9/15 5.9
    Biopsy. 10/1/15. Univ. of Chicago G6/G7
    10/12/15 BS/CT -
    Stage 10/28/15 T2C
    RALP 12/29/15
    Final Path:
    -15LN
    G9 (4+5)
    +EPE ,+LVI, +RSV, -LSV, PI, 2PM, pT3BNO
    uPSA 2/9/16 0.05
    uPSA 3/23/16 0.11
    Casodex 4/1-8/5/16...Lupron 4/15/16-5/5/18
    SRT 6/14/16- 8/5/16 38TX
    uPSA 8/10/16- 8/18/21 <0.01 T=413
    2/17 Loyola Chicago
    11/15/18...AUS 800 3/27/19..AMS 700

  • #2
    Welcome to the new site! Yes, the spam blockade has been a problem for a few members. Not sure if we can do anything about that.
    Late 2012: PSA 4, age 62 all DRE's 'normal'
    Early 2014: PSA 9.5, TRUS biopsy (false) negative
    2015: PSA's 12 & 20, lots of Cipro ... Mar '16: PSA 25, changed Urologist

    Jun'16: MRI fusion biopsy, RT base, 2ea 15-40-100% G8(4+4)
    Aug'16:DVRP, "broad cut" 11 LN-, neg margins, gland 53g, 25% involved
    multifocal EPE, PNI, BNI, bilateral SVI, pT3b N0
    Dec 2016: Mrs: Dx stage 4 NHL/DLBCL, Primary Bone Lymphoma
    spinal RT boost+6X R-CHOP21+6X IT MTX via LP.
    Remission ended 2020, Follicular NHL. Currently active surveilance.

    Mar 2020: older adult son, T-cell acute lymphoblastic leukemia (TALL)
    Hyper-CVAD + pegaspargase, RBC transfusions in NYC amid COVID-19

    Bone marrow transplant Oct 2020, currently in Remission
    Jan'17: began Lupron ADT, uPSA's ~.03
    May'17: AMS800 implanted, revised 6/17
    Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
    Jan 2018-Jan 2022: PSA's <0.008, T=50
    Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritis
    June 2020: younger adult son, small bowel resection
    adenocarcinoma of lower ileum (SBA) w/+lymph node, stage T3a-N1
    Adjuvant chemo: 12x FOLFOX, currently in Remission

    "Everyone you meet is fighting a battle you cannot see"

    Comment


    • #3
      Thank U Rob for all u have done to get us here, and thanks to all those who have worked behind the scenes. Please let me know how I can contribute any money needed for this...MM
      DOB-2/16/58
      psa-9/15 5.9
      Biopsy. 10/1/15. Univ. of Chicago G6/G7
      10/12/15 BS/CT -
      Stage 10/28/15 T2C
      RALP 12/29/15
      Final Path:
      -15LN
      G9 (4+5)
      +EPE ,+LVI, +RSV, -LSV, PI, 2PM, pT3BNO
      uPSA 2/9/16 0.05
      uPSA 3/23/16 0.11
      Casodex 4/1-8/5/16...Lupron 4/15/16-5/5/18
      SRT 6/14/16- 8/5/16 38TX
      uPSA 8/10/16- 8/18/21 <0.01 T=413
      2/17 Loyola Chicago
      11/15/18...AUS 800 3/27/19..AMS 700

      Comment

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